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I have heard this term used extensively over the past week or so, or at least an alternative form of the word and what was to me a new term: de-congregation. This new language that I was experiencing was at the United Nations in Vienna, where I was attending the Zero Conference, whose aim is14th March 2019
We know from our service users, many disabled people choose to employ a family member to provide their personal assistance. Researchers in Sweden, who explored the relationships between disabled people and their PAs, found this has many advantages for both parties. Disabled people who took part in the study reported feeling this was a good8th March 2019
It’s one of the most demanding and exhausting roles anyone can have but its also among the most loving, life-affirming and rewarding. Caring for someone can be full of challenges and an emotional roller-coaster. You need extra reserves of patience at times, and good friends to confide in. Personal Assistants offer more than physical assistance4th March 2019
Heavens knows, I have engaged in the challenges of disability access for nearly a decade now and I know that I have peers for whom this has been a longer campaign. Yet despite all of our efforts in this area, we appear to be no further forward than when I first began. The battle for12th February 2019
Self Directed Support helped me get my confidence and independence back. It meant I didn’t have to completely rely on my family for support. Having a PA has enabled me to start living my life independently.
The Centre for Independent Living really helped us understand how we can use direct payments to live independently. Their advice enabled us to get the support we needed.